On Rare
A Life Sciences podcast by BridgeBio Pharma
5.0 • 6 ratings
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“If I had known then what I know now, I wouldn’t have been so scared.” Alex is the mother of Hudson, a boy living with hypochondroplasia, a rare form of dwarfism.
Published: June 10, 2024Jonathan Fox, MD, talks about ATTR
Published: April 25, 2024“We Only Live in This Moment.” Part Two of a two-part conversation with Eric, who lives with Transthyretin Amyloidosis (ATTR).
Published: April 25, 2024“Accentuate the Positive.” Eric is living with Transthyretin Amyloidosis (ATTR).
Published: April 3, 2024“Having a brother with a rare condition has changed who I am. My family has a big heart because of my brother.”
Published: February 26, 2024“You have to find your people. It’s the most important thing you do along this journey.” Effie is the mother of Ford, a boy living with CTNNB1 syndrome and host of Once Upon a Gene.
Published: January 29, 2024“I didn’t know I was part of a rare community until I started listening to the Two Disabled Dudes podcast.” Effie is the mother of Ford, a boy living with CTNNB1 syndrome and host of Once Upon a Gene.
Published: January 19, 2024We listened, we learned, we laughed and we cried! On Rare celebrates the incredible conversations of 2023!
Published: December 22, 2023“In some ways, the sun has been my mortal enemy.” Jay is living with erythropoietic protoporphyria (EPP).
Published: December 4, 2023“Improvise. Adapt. Overcome.” Dan is living with limb-girdle muscular dystrophy, type 2I/R9 (LGMD2I/R9).
Published: November 8, 2023