Once Upon A Gene
A Personal Journals podcast by Effie Parks
5.0 • 176 ratings
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Recent Episodes
Smarter Speech: How Q-Voice Is Changing AAC for Families and Therapists with Lana Marcucio
Published: October 24, 2025Why Genetic Testing Matters: The Case for Genetic Testing and the Start Genetic Movement - with Geraldine Bliss
Published: October 16, 2025Mini Brains in a Dish: Organoids and the Future of Personalized Rare Disease Medicine
Published: October 2, 2025Healing in the Mess: Storytelling, Friendship & Finding Love - Author of The Unlikely Village of Eden, Emma Nadler
Published: September 4, 202515 Years of Simons Searchlight: Dr. Wendy Chung on How Families Shape Rare Disease Research and Spark Aha Moments - with Wendy Chung
Published: August 28, 2025A Rare Collection - Rare Disease Storytelling with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point
Published: June 12, 2025Finding Joy in the Journey: A Guide for Parents of Medically Complex Kids with Amber Pierson & Chelsea Kuhn
Published: June 5, 2025From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency
Published: May 15, 2025GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman
Published: May 1, 2025Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman
Published: April 18, 2025
