Once Upon A Gene
A Personal Journals podcast by Effie Parks
5.0 • 176 ratings
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Ready for Take Off: Mission for Accessible Air Travel & Disability Advocacy, with Mindy Henderson
Published: November 14, 2024The Unique Expertise of a Genetic Counselor - Helping Rare Disease Individuals and Families Navigate Through Complex Emotions and Circumstances Like Guilt, Grief, and Shame with Mary-Frances Garber
Published: October 31, 2024Hospital Survival Kit - Advocating for Your Child Without Losing Yourself
Published: October 17, 2024Real-World Self-Care for Caregivers - Tiny Wins, Small Shifts, and Taking Back Your Power
Published: October 10, 2024Finding Strength in Friendship - Building In-Person Connections for Special Needs Moms with Colorado Mama Tribe - Mariah Gillaspie
Published: September 26, 2024Beginners Guide to Rare Disease - Wisdom from Others Who Have Been There
Published: September 19, 2024Chasing Glimmers - Electric Love Disability Retreats
Published: September 12, 2024Choosing Friends as a Rare Disease Parent - Building a Supportive Circle with Genuine Connections
Published: September 5, 2024Chasing Glimmers - Whats Glimmering with Katie Lloyd
Published: August 29, 2024A Mother's Mission - Project Baby Lion, ASO Therapy and the TNP02 Foundation with Yiwei She
Published: August 22, 2024