Once Upon A Gene
A Personal Journals podcast by Effie Parks
5.0 • 176 ratings
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Create a free accountRecent Episodes
Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio
Published: March 28, 2024Krabbe Disease with Kasey Feldt
Published: March 21, 2024BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay
Published: March 14, 2024A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action
Published: March 7, 2024Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini
Published: February 29, 2024James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child
Published: February 22, 2024More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade
Published: February 15, 2024Uniting Science and Hope - COMBINEDBrain and it's Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell
Published: February 8, 2024A Rare Collection - Five Advocacy Aces Share Their Conference Commandments
Published: February 1, 2024Soundtrack of Silence - Love, Loss, and a Playlist for Life with Neurofibromatosis Type 2 (NF2) Patient Advocate - Matt Hay
Published: January 25, 2024