Once Upon A Gene
A Personal Journals podcast by Effie Parks
5.0 • 176 ratings
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Chasing Glimmers - From Grief to Glitter: Parenting Through Infantile MLD and Embracing Life’s Full Spectrum - with Megan Gillet
Published: December 19, 2024The Gift of Grace: A Holiday Heart-to-Heart for Caregivers
Published: December 12, 2024Grateful Reflections for Epilepsy Awareness Month: Parents Share Love, Lessons, and Insights from the Dravet Syndrome Community
Published: November 27, 2024Ready for Take Off: Mission for Accessible Air Travel & Disability Advocacy, with Mindy Henderson
Published: November 14, 2024The Unique Expertise of a Genetic Counselor - Helping Rare Disease Individuals and Families Navigate Through Complex Emotions and Circumstances Like Guilt, Grief, and Shame with Mary-Frances Garber
Published: October 31, 2024Hospital Survival Kit - Advocating for Your Child Without Losing Yourself
Published: October 17, 2024Real-World Self-Care for Caregivers - Tiny Wins, Small Shifts, and Taking Back Your Power
Published: October 10, 2024Finding Strength in Friendship - Building In-Person Connections for Special Needs Moms with Colorado Mama Tribe - Mariah Gillaspie
Published: September 26, 2024Beginners Guide to Rare Disease - Wisdom from Others Who Have Been There
Published: September 19, 2024Chasing Glimmers - Electric Love Disability Retreats
Published: September 12, 2024